A Good Week

Yes, we are back at JR for another MLB – however… post emergency surgery last week Dominic has been soooo much better! To the point of almost being a completely different baby! Also, I tend to only write about the dramatic medical things – so it’s nice for me to update you that actually, last…

Ronald McDondald House

Here is one of the things I am infinitely grateful for when Dominic is in hospital for a long time, away from Home and severely ill.  Parent accommodation. Something that you would never even consider or think about until you are in the worst of circumstances- miles from home with your child on life support….

Blue lights, sirens, emergency airway surgery

Last night James took Dominic into our local hospital because he was in respiratory distress. Full on sternum recession, intercostal recession, tug under the chin and nasal flaring. He went into Resus, was put on CPAP, then octiflo, but none of it has made any difference to the distress. The local hospital called the on-call…

The Long Stay

I debated writing this blog for a while. It is almost impossible to explain the effect on a parent of a long term stay in hospital with a poorly child. I appreciate that everyone would cope differently, even my husband and I both have very different strategies, but I haven’t met one parent that hasn’t…

Blue Lights and Sirens… Again…

I really have started a nice post about actually escaping John Radcliffe last Tuesday – however, it’s all been a bit of a nightmare since then. Just for a bit of background, since being home Dominic has had issues with Vomiting, insomnia, withdrawal and completely inconsolable crying – for no reason we’ve been able to…