Cots, Cribs and Carpentry

Dominic is incredibly privileged to have a very talented grandpa who has made him both a beautiful rocking crib and a cot… and as we have just done the great crib to cot transition – I thought I’d write a little about them in case anyone wanted to put in any orders 😉. Fair warning…

Rhymetime at the Library

I order to celebrate our WE ARE NOT IN HOSPITAL TODAY day yesterday – Dominic and I decided to try out Rhymetime at our local library. After swimming not ending in tears, and infection or another trip to the hospital – I was feeling that maybe Dominic was now at well enough to attempt socialising…

A Good Week

Yes, we are back at JR for another MLB – however… post emergency surgery last week Dominic has been soooo much better! To the point of almost being a completely different baby! Also, I tend to only write about the dramatic medical things – so it’s nice for me to update you that actually, last…

Ronald McDondald House

Here is one of the things I am infinitely grateful for when Dominic is in hospital for a long time, away from Home and severely ill.  Parent accommodation. Something that you would never even consider or think about until you are in the worst of circumstances- miles from home with your child on life support….

Blue lights, sirens, emergency airway surgery

Last night James took Dominic into our local hospital because he was in respiratory distress. Full on sternum recession, intercostal recession, tug under the chin and nasal flaring. He went into Resus, was put on CPAP, then octiflo, but none of it has made any difference to the distress. The local hospital called the on-call…

The Long Stay

I debated writing this blog for a while. It is almost impossible to explain the effect on a parent of a long term stay in hospital with a poorly child. I appreciate that everyone would cope differently, even my husband and I both have very different strategies, but I haven’t met one parent that hasn’t…

Blue Lights and Sirens… Again…

I really have started a nice post about actually escaping John Radcliffe last Tuesday – however, it’s all been a bit of a nightmare since then. Just for a bit of background, since being home Dominic has had issues with Vomiting, insomnia, withdrawal and completely inconsolable crying – for no reason we’ve been able to…

One thing after another, after another…

Dom is doing better. The tamazipam has stopped all the horrible withdrawal symptoms from the medazalam so he is now able to sleep. He has stopped having spasms, he can be put down again… life has become more manageable. Especially as last night a doctor prescribed me a sleeping tablet and I slept too! 8…

Withdrawal

Dominic was on some pretty serious sedatives after his operation and now he is in the worst withdrawal I have ever seen. They’ve been treating him for morphine withdrawal but because it’s been 3 days and it’s still horrific, they’re now starting him on a medazalam withdrawal programme too. He hasn’t slept in 3 days….

Cuddles!

Can you imagine what it is like not to be able / allowed to pick up or hold your baby for an entire week?! It’s awful. Truly, gut-wrenchingly painful.  I know I’ve been here before. After I gave birth, it was Day 6 before I got my first cuddle with Dominic, but somehow this feels…

Monitors

I haven’t written an explanation blog for a while. There’s been a bit too much drama report on… however, we’re now in the next stage of waiting before op 4 on Monday so I thought I’d explain about the standard monitors you see on every hospital patient – and in every hospital drama. So, as…

Post Op – Hernia Surgery

Suffice to say, it’s day 11 and I am totally starting to lose my marbles. It’s just an inevitable decline from “I am strong, I can do this, it’s all going to be fine” to a blubbering heap of “I can’t do this anymore, I just want to take him home, I want a cuddle,…